Dr Hutson at Nick's 1 mo post-op appt!
Dr Sussman with Nick at his 1 mo post-op appt!
His twice-a-day medications!Well, Nick was released from the hospital on May 29. It was 2 days shy of 4 weeks from his liver transplant. The girls have been thrilled to have him home and have been showing him their toothbrushes and pajamas....anything to sit by him on the couch. I think it overwhelmed him at first once he realized that a house with children isn't really quiet or boring for very long. Nick's biggest complaint right now is that he can't sleep through the night. He has tried two different medications, but nothing gets him a deep, full night. (He does have me bring him snacks in the middle of the night which is the good news.) He is eating or snacking all the time. In the 10 days he has been home, he has gained about 10 pounds! (Too bad I can't give my home-cooking the credit!) He is also getting stronger. He has mostly been using a walker to get around, but his physical therapist brought a crutch/cane today and walked down to the end of the street with him. Nick says it is much easier to maneuver than his walker, so things are getting better each day. We still take him down 3 times a week for lab work and on one of those days we get to hang out in Salt Lake for a couple hours until his clinic visit with all of his doctors (too bad he can't go to the movies--it would almost be like a date!) I love his doctors! Dr Sussman and Dr Hutson are his hepatologists. They evaluate how well his body is accepting his new liver. Dr Sussman is so funny! He makes jokes all the time and if you are not listening you miss it. Dr Hutson was the one that performed his liver biopsy and called me the morning they knew they had a liver for Nick. He has the biggest heart and truly cares about Nick's progress. We will continue to see them every week through June, I think, and then maybe every other week. Right now, we function day by day, focus on all of the progress Nick is making, and are grateful that he's home!
5 comments:
Great job Nick! Way to hang in there, eating, gaining weight, and moving around.
Thanks for posting Rachael. It is nice to know how things are going. I like to be able to tell Audrianna who asks all the time, "mom, do you know how Nick is doing?" Good luck in the upcoming weeks/months! We'll keep praying for you.
In all of my hospital visits, I never saw Nick's doctors so it's fun to finally see what they look like! I'm just thankful every day that Nick is doing so well. He's such a miracle!
Emma looks beautiful in her dance pictures. A little supermodel! We love you guys!
Hooray! So glad to hear that things are still on the up and up! Go NIck! Go Rachel! :)
I'm SO glad Nick is doing so well. He looks so thin, I'm happy to hear he's gaining weight and moving around.
Still praying for you guys!
Rachel you are such a trooper you stayed so positive through all of this. You are someone we can all learn from I don't think anyone could have handled this as well as you have. We are so glad nick is home! You guys are in our prayers.
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